Daniel Shlyakhov, for who the whole Yamal had collected money, got back on his feet. Masha Ryabchinskaya needs help
16:41 3 декабря 2018
Категории: News in English
Shlyakhov Dmitry, father of little Daniel called to the editorial office of the news agency “Sever-Press” and thanked the management of the agency and the staff for the information assistance.
“You were the first in Yamal to respond to pleas for help to our baby, thanks to your publication in the media, concerned residents of Yamal responded. We want to thank them all through you and report back. The second cycle of chemotherapy is over. Daniel began to walk and play with toys, becomes cheerful, tummy decreased, hair on his head fell out, eyebrows and eyelashes stayed. He’s got pneumonia because of his weakened immune system, but we believe he can overcome it. The most important thing is that chemotherapy helps the little hero, and the tumor becomes smaller”, as Dmitry Shlyakhov said.
As we should remind, all concerned residents of Yamal collected money for three-year-old Daniel from Salekhard. Daniel has stage IV neuroblastoma; the tumor has metastasized to the lymph nodes.
According to Dmitry Shlyakhov, today the boy has improved all values, the bone marrow is completely cleared of cancer cells.
“We transferred funds in the amount of 4 million 137 thousand 548 rubles to the charity foundation “Yamine”, as Daniel is treated in Moscow at the expense of the Federal quota. In Israel, we were only one day, on arrival instead of the stated 98 thousand dollars the clinic demanded 350 thousand. Thanks to the director of the foundation “Yamine” Dmitry Frolov, who responded to our request for help, we have considered all treatment variants in Russia”, the boy’s father said.
Outpatient medical examination of Daniel was paid at the expense of the foundation. Now he is being treated for free, the family will not need money for the entire time spent in the hospital of Blokhin.
“Therefore, it makes no sense to keep the collected money when children die every day because of the lack of necessary sum required for treatment. We hope that the money transferred to the charity foundation “Yamine” will provide valuable assistance to children in need of funds right now”, Dmitry Shlyakhov said.
At the end of the conversation he asked residents of Yamal to help a resident of Noviy Urengoy, thirteen-year-old Maria Ryabchinskaya.
“Masha is 13 years old. The diagnosis was acute lymphoblastic leucosis with rare peculiarity of translocation, which is recurring and does not allow my girl to live, as many kids do, going to school and doing things she loves. The disease is affected only by CAR-T therapy, but it is not available in Russia. Today it is used only in America, Bethesda, Washington. At the moment, the child is in the regional children’s clinical hospital of Yekaterinburg, from where correspondence is conducted with the clinic with participation of the attending physician”, as the girl’s mother Svetlana Ryabchinskaya told a correspondent of the news agency “Sever-Press”.
Masha was first diagnosed at the age of 8 in 2014 at the clinic of Rostov-on-Don. The treatment lasted 2 years. In August 2016 she went into stable remission and was released home under control at her place of residence. A year later – the relapse. Another 6 months of hospital treatment in Yekaterinburg, chemotherapy, anesthesia and puncturing. On January 23, 2018 haploidentical bone marrow transplantation was performed. But on September 11, 2018 doctors of Yekaterinburg confirmed the second relapse. Again, the hospital regime, now for an indefinite time. Today they have undergone 2 anti-relapse chemotherapy blocks. Taking a bone marrow puncture determined the residual degree of the disease. The attending physician informed about the necessity of re-bone marrow transplantation.
“My daughter is not discouraged and fights for life, but the forces may not be enough for long time. The fifth year of struggle is still a term”, Svetlana Ryabchinskaya says.
And Dmitry Shlyakhov assures that the most important thing is not to give up! And Masha Ryabchinskaya has hope for recovery, but more than 6 million dollars that are required for treatment is an unaffordable amount for the family. Therefore, the family asks for help.
On the photo mother’s Sberbank card details: 4279670018197216, Svetlana Yevgenyevna. (https://sever-press.ru/2018/12/03/danijel-shljahov-kotoromu-sobirali-dengi-vsem-jamalom-vstal-na-nogi/)